Thursday, January 10, 2008
Vision-Eye Chart A Year Ago
Tuesday, January 8, 2008
Vision- Symptoms
Sunday, July 22, 2007
Vision-Night Fears
Night Fears I Can't Breathe!
watercolor 7.5" x 11.5"
I read the brochures that the doctor had given me on Wet Macular Degeneration. I searched for information online. And, I used the little Amsler Grid, the chart of squares with a dot in the center, to check my vision daily, as directed.
It was all unreal. "What can I do to make this go away? It is all a dream, isn't it? What am I supposed to do now? What is going to happen to me? I can't go through this. This isn't happening. Does it hurt? Where am I going to get the money?" Thoughts raced through my mind. And, I read all I could find about this disease, illness, disability, condition, whatever it is.
"You are not getting any shot in your eye!" My daughter lectured. "That's gross!"
I didn't respond. I didn't think it would ever get to the point of having to do that. I was still trying to cope with being probed to get an IV in for the dye used in the test in the doctor's office.
Shots and needles are not my thing. I have been known to faint, even when they bring out a needle, or just probe for a vein-over and over. I even fainted when I got my ears pierced by a doctor. I have veins, but they roll, and I only have a couple of good places that they can hit-sometimes. It takes a lot of good luck and a special person to hit one of my veins. I've been told that they hope I am never in anything like a car wreck! And, I've had as many as 6 people at one time, probing my legs, feet, arms, hands, in the hospital trying to get an IV in. They gave up. And, yet, some people have that magic touch and hit it without any problems. The last time I was in the hospital for stomach pains, they were going to give me an IV that had something in it for pain. The elderly nurse couldn't hit a vein. So, she called in someone from Intensive Care. He tried once, then gave up and said he was going to put the needle in my head!
"Oh no you're not!" I exclaimed. "I'm not that sick!" I was ready to run out of the hospital.
"Oh yes you are, or you wouldn't be here," the big male nurse from ICU said.
"Honey, you can refuse any treatment," the nurse advised.
"I refuse!" I said as I sat up in bed.
The male nurse left, and I was left alone with my stomach pains. "Can't you do something else?" I asked the nurse.
"That's all we have orders for." The nurse seemed to ignore me, since I didn't accept the treatment. Pains came and went all night while the IV stand with medicine remained in the corner. Fortunately, they brought in an elderly woman, who didn't speak English, with a crowd of her family. She was in the other bed in the room. I couldn't sleep for the pain, but, at least, they were a distraction, and occasionally, the visitors would talk to me, mainly to ask about hospital routine.
When morning came, a doctor came by, and, without checking me, just told me that they would send me home. No tests to see what was wrong or anything. The docotor who sent me to the hospital had kept me in the clinic all day, and, when they closed, he sent me to the hospital. He said I had a lot of air in my stomach, but didn't know why I had the severe pains. The pains eased but it took a long time for them to go away. What a nice Valentine's Day that was!
Anyway, shots and needles, stitches and that sort of thing are things that often make me faint. And I wanted to be a nurse! I think it went back to times, during WWII, when I was young. Younger doctors went off to war, and older doctors came out of retirement to take care of the town, temporarily. I had sinus trouble quite often and one of the treatments for that was a pencillan shot. Or, we could drive 30 miles to the ENT doctor and have a sinus treatment of various kinds. If we got sick, my mother would take us to one of the town doctors, or call them to the house as doctors made housecalls in those days. If we could make it upstairs, over the bank, we went to the doctor in town. If we couldn't get up the stairs, he would come to the house. One of the elderly doctors in town who was taking care of us had overstuffed leather furniture in his office, much like in the old western movies. It was hard as a rock, to sit on, but looked like it would be soft. I dreaded going to his office, though. He would bring out a long, thick needle from the sterilizer, fill it with penicillan, which was the new wonder drug, then, and walk across the room. My mother would have to hold me down, threaten, and the doctor coaxed, fussed, and anything he could think of to get that needle into me. Well, the needle was bad enough, but these were old, bent, and I could swear they were a little rusty. I was terrified of those shots, and usually ended up with having to have smelling salts or spirits of ammonia to revive me. I would faint away at the sight of a needle. And, I still don't like them. Although, I did want to be a nurse!
A dentist helped me get over that, long enough to think about going to nursing school. Then, it all came back. Later, when my son was killed, I thought,"nothing could hurt me as bad as that train hurt my little boy." I was brave again, but it all came back as time passed.
After the diagnosis of Wet Macular Degeneration, I spent a lot of time online trying to find out more, looking for experiences of others, and pictures, most of the time online. I found a few things such as paintings by people with AMD, in an exhibit from a few years back, and a few stories of people who had AMD. Most seemed to be research of a treatment that had just been approved, or treatments that had been approved for a while and the sites were a bit out of date. Laser treatments seemed to be an option, but they left a "hole" in the vision where the beam burned as it sealed leaking blood vessels. An older treatment involved shots in the affected eye or eyes. But the new treatment was more promising. It, too, involved injections in the eye.
My job was to decide which treatment I wanted. The new treatment sounded most promising. And, there didn't seem to be any question, according to the material I could find, but that it would be the thing that would stop any more vision loss. I couldn't see any point in trying the older treatment, if it wasn't going to work as well, or if it was going to leave a blind spot, as it sounded like laser treatment would do.
I needed my eyes. I was sure of that. Now that I had time, my art and my writing, with some genealogy, some reading, a little cooking, and time with my youngest grandson, and a lot of tv watching, filled my days. Bad knees made me decide that driving wasn't a good thing for me, anymore. And I didn't want to go through surgery. Fear of needles, stitches, and all that again.
I tried to relax and tell myself that there was treatment available, all I had to do was tell them which one I wanted, and show up when told. They said that my insurance would pay for it, and, if I needed help, there was help through a foundation. And, they had made contacts, so all was ready, awaiting my decision.
But, I just didn't know about shots in my eyes. If they poked a hole in my eye, wouldn't all the water run out and it would deflate like a balloon? Wouldn't it hurt? Wouldn't I blink and they couldn't hit my eye? Wouldn't I faint and they couldn't hit it? I had heard people talking about having to be awake while things were done to their eyes. I didn't think I could manage that. I surely didn't want to be aware of anything. But, still, if it could be fixed....I surely didn't want to lose my vision.
In the dark, at night, alone, with lights from the tv bouncing around the room, I sat up straight in my bed, gasping for breath. My eyes were wide with fear. Tears ran down my face. I braced myself on the bed. "I can't breathe!"
"This is so dumb! You're a big girl,now." I lectured myself. "There are so many things worse than this. You are such a baby! It's just part of getting old. Just think about Poor old Pearl, and others, who went totally blind because she needed cataract surgery. They said you won't go totally blind with this, it's just the center part that you will lose. Maybe, with shots, you won't lose much more than this little distortion." It took a while before I could make myself relax and go back to sleep. That was just one night of many when I would sit up straight in bed, trying to get my breath. I might as well stay up and do something, I had learned a long time ago. I always was more energetic at night, and thought that, instead of wearing myself out, tossing and turning, trying to force myself to sleep like a normal person, I might as well get up and write, draw, paint, clean, do laundry until I was exhausted and had to sleep. Usually that was when the sun came up. And that didn't work too well when I had to go to work or had children to take care of. Still, if I were painting or doing sculpture, I might work all the way through the night and several days as well, until I was finished and I lost my mood or idea.
I got my nerve up, made the call for an appointment. and told them that I thought that the new treatment would be best. I was told that my insurance would pay for it, and all was set. Now, all I had to worry about was the fear of having a needle stuck in my eye.
I talked to my sister about her experiences with a tennis ball injury to her eye, some years back. But, then, she was tough, independent, and not a "scardey-cat", like me. And I met others who were getting shots in their eyes and had been diagnosed with AMD, wet or dry, or other eye problems. I knew I wasn't the only one going through this. I felt that I needed support from someone and I didn't have it at times when I thought I really needed it, like at night, when I was alone, or when uncertainty and fear struck. Still, taking care of this was something I needed to do. What would I do if I couldn't draw, read, work on my genealogy, see faces, watch tv, or even cook? I wasn't driving due to my knees, but thought that would return once my knees were replaced. But, what if I wanted to drive, my knees were fixed, but my vision was messed up! I was in a quandry. But, there didn't seem to be a choice. Just which treatment I wanted, all of which seemed frightening to me.
"You are not getting a shot in your eye!" My daughter insisted. I just said nothing, and resolved that this was something I had to do. I knew that she would not want to be tied down, taking care of me for every little thing if I lost my vision. And, what would I do with myself if I couldn't see? I read about some artists who had AMD in the past, and realized that some of their style was due to the fact that their vision was distorted. Probably, no matter what happened, I would create, somehow.
One bad thing was having to wait until there was an available appointment. I was careful to tell myself that going to the doctor and taking care of this was a good thing-something that I must do as a grown person. It probably wouldn't be as bad as I was feeling that it could be. A lot of other people were going through this and I was lucky that there was a new, more effective treatment available now. I tried to stay busy. Staying positive and determined was not so easy.
At night, in my room, the lights from my tv danced, and, sometimes, it was hard to breathe or to sleep. I was doing a good thing, I reassured myself, and everything would be alright. I didn't want to have to think about it, but I couldn't shake the constant questions and fears that I had.
"Night Fears" was done with Winsor Newton watercolors on 140 # Strathmore watercolor paper.
Tuesday, July 17, 2007
The Grid
The Grid 5.5" x 7.5" watercolorIt was time. I thought I would go in a bit early, before my drivers license would expire on my birthday, and get my eyes checked. I knew that going in, as the notice stated, would require an eye test. I guessed that my age would require this, after years of just renewing by mail. And, I was sure that, with the funny things that had been going on with my eyes, I would need some glasses.
I had given up on going back to the doctors where I had been going for years. I lost my good insurance when I retired. Knee replacement surgery was in the works, but I had to drop that idea. I couldn't afford to pay two insurance companies premiums, teacher retirement plus Medicare, plus pay deductables, copays, and whatever insurance wouldn't pay. Teacher retirment insurance was all I could manage, and I really needed that money for other things. When I retired, I was told that I was not eligible for Social Security since they had changed the way they do things. Low paying jobs, when I was younger, didn't pay enough to give me the quarters I needed. During the time of those jobs, I was told that I would be so glad when I retired, that I had struggled with my little paychecks so that I would have that money when I got older. I just threw that money away, and I sure could have used it at the time! I would never see a dime of it.
Texas teachers don't get Social Security, but have a separate retirement plan. If someone has worked other jobs, or if they are eligible for their spouses Social Security, then they will have both checks on retirement. I'm not sure about all the details of it, since it wouldn't apply to me.
I was told that I would have to apply for an individual policy with the clinic where we had our group insurance when I retired. I did, and after years of being with them, they turned me down. They said they didn't have to explain why. Which I thought was kind of a hateful attitude. I had my certain doctors to use and had not found any others who I trusted in town. But, I found that if I had Medicare, plus teacher retirment insurance, I could continue to see my doctors. That worked for a while until I could no longer afford to buy medicine or pay the copays and deductables. And, Medicare went up, so I couldn't afford that either.
I cut out going to the doctor, prescription medicine, along with Medicare, the newspaper, drinking water, my car, getting my hair fixed, clothes, shoes-anything that I could possibly cut, in order to get along on my reduced income after retirement.
I called the office of the Opthamologist who I had gone to before we got the good insurance with a clinic. I asked about the cost of an eye exam, and made an appointment. Then, I borrowed the $132.50 to pay for it.
The appointment was a week away, but, then they called and changed the date to the following week.
I went into the doctor's office, armed with my cash to pay for the visit, and worrying that glasses would be an added expense. I took an old pair of glasses, thinking I could use the old frames, at least. I couldn't see a thing through the old glasses and they weren't in style anymore.
My daughter took me since I knew that I would have my eyes dilated.
Paperwork was filled out, and I put my teacher retirement insurance down, just in case they wanted an insurance company. I told the receptionist that I intended to pay for it. She said, "Let's try your insurance first. We'll bill you, if they don't pay."
Whew. That was a relief. Maybe I could use the money to pay for glasses, and the insurance might pay, but I doubted that. I didn't remember seeing that they would pay for eye exams or glasses. But, then, I didn't know a lot about insurance. I only knew that they would probably try not to pay for anything they could. I could worry about the bill after Christmas.
The eye doctor was very nice and I explained why I was there. I wanted my eyes checked before I went to take an eye test for my drivers license, and thought I might need glasses to drive.
The last time I had my eyes checked, I had trouble reading the chart. That doctor said I had the beginnings of cataracts, and to just blink my eyes until it cleared up. I would blink and blink, but it didn't clear up, until later. He said it was too soon to do anything about the cataracts. But, that had been about 3 years ago.
This time, however, I blinked, and I could read most of the chart with one eye, not as much with the other.
The doctor told me that the cataracts still were in the early stages. He left the examining room and returned with a black card with white squares on it. He told me to stare at the dot in the center, with each eye.
Well, that was strange. There was a purple spot in the center, and the lines waved around it.
He left and then returned to the room to dilate my eyes. I looked into the machines and he looked into my eyes. Then he let me sit for a while.
"I guess he must be planning on going out of town or thinking about what he is going to do this weekend, since it is Friday, I thought."
"Well, the good news is that your eyes are good enough to pass the driving test. The bad news is that you have Macular Degeneration in one eye." He handed me a phamplet. I couldn't really read it, though, since my eyes were dilated.
He escorted me to a chair in the hall where I enjoyed looking at the frosted pink light fixtures on the wall. This office was much more tastefully decorated than the previous office I had been to years before. I complimented him on the nice furnishings and the fascinating, soft lights.
"I want you to see a Retina Specialist this afternoon," he announced. "I didn't see any signs of bleeding inside, yet, but, if blood gets in there, it is permanent and they won't be able to fix it."
"My eye was bleeding?" I wondered.
"These things come on suddenly, but there is treatment and they can save your vision, if you get in right away." He led me to the receptionist, took the telephone, and called to make the appointment himself."
He gave me some wrap around plastic dark glasses, but I was just numb and stunned. "Bleeding in my eye! Save my vision! But, don't I just need some glasses? See another doctor this afternoon? What do they do to you?" I didn't even think that I may not have enough money to see another doctor. I decided that I still had the money so I guess I would use that for the second doctor instead of glasses. After all, the doctor had said that my eyes were good enough to pass the eye test, and that's what I had gone for.
The Retina Specialist was out of town that day, according to his receptionist, via phone. So the first receptionist asked information while the other receptionist asked questions. She gave my teacher retirement insurance information. They could take me Monday at noon. The first doctor said that will be alright. I guessed that I wouldn't bleed to death or go blind by then, if he said it was okay. But, that gave me the weekend to worry.
Would they hurt? Would I be able to get my license? I read the phamplet that the doctor gave me. There was a little chart on the back, which I was told to use daily, mark it, and compare it to see if there were any changes in my vision. I thought that I liked the black one in the doctor's office best!
I stared at the dot in the center, with each eye, and with the left eye, there was the purple spot, and the curved lines around it. I used a pencil, lightly, to trace around the edges where the distortion was.
This chart is called an Amsler Grid. There are examples online. I'm still using the little chart on the phamplet. There is a note on the bottom that says to call your doctor right away if you notice any changes.
One reason I started the blog was to share my experiences, as well as memories, with others. I couldn't exactly describe what I was seeing, but I thought that I could show it through a painting or a drawing. I searched on the internet and couldn't find much information about what people with Macular Degeneration were seeing and experiencing. And I didn't see anything about what people with limited funds go through when this happens to them. I don't have all the answers, but, maybe someone will be more prepared when it happens to them. Even those who do have the funds and the insurance need to know what to expect.
Macular Degeneration happens to more and more people as we age. It's called AMD or Age Related Macular Degeneration.
Of course, the point is that, if you, or someone you know, starts seeing horizontal or vertical lines that seem curved instead of appearing straight, it's time to make a fast appointment with your Opthamologist or a Retina Specialist. It comes on suddenly, without warning, without pain, but time is important in getting a diagnosis and treatment.
The small painting that I have posted today shows how I have been seeing the Amsler Grid. Some of the lines not only curve, but they don't connect to show a complete square, in places. There is the ever-present purple spot in the center.
Along with showing my view of the grid, I thought it might be a bit abstract or design-like.
I used Winsor Newton watercolors on 140 pound Strathmore watercolor paper to do this small painting.







